Title Paroxysmal Nocturnal Hemoglobinuria (PNH) Registry
Protocole ID Registre PNH (M07-001)
ClinicalTrials.gov ID NCT01374360
Cancer Type(s) Hemato/Graft
Phase
Stage
Study Type Other
Drug
Institution CISSS DE LA MONTEREGIE-CENTRE
   HOPITAL CHARLES-LE MOYNE
      3120 boulevard Taschereau, Greenfield Park, QC, J4V2H1
City Greemfield Park
Principal Investigator Dr. Catherine Sperlich
Coordinator Caroline Millette
450-466-5000 poste 3276
Status Recruiting
Activation Date
Eligibility Criteria
  • Patients of any age, including minors, with a diagnosis of PNH or a detected PNH clone, including patients previously treated with Soliris and withdrawn from treatment. (Subjects under the age of eighteen years must have parent/legal guardian consent. Upon turning eighteen years of age, these subjects must be re-consented).
  • Ability to comprehend and sign consent to have data entered in the PNH Registry.
Exclusion Criteria