Groupe d'Etude en Oncologie du Quebec

Title	Paroxysmal Nocturnal Hemoglobinuria (PNH) Registry
Protocole ID	Registre PNH (M07-001)
ClinicalTrials.gov ID	NCT01374360
Cancer Type(s)	Hemato/Graft
Phase
Stage
Study Type	Other
Drug
Institution	CHU DE QUEBEC – UNIVERSITE LAVAL L'HOTEL-DIEU DE QUEBEC ET CRCEO 11 Côte du Palais, Québec, QC, G1R 2J6
City	Québec
Principal Investigator
Coordinator	Theresa Jones 418-691-5181
Status	Recruiting
Activation Date
Eligibility Criteria	Patients of any age, including minors, with a diagnosis of PNH or a detected PNH clone, including patients previously treated with Soliris and withdrawn from treatment. (Subjects under the age of eighteen years must have parent/legal guardian consent. Upon turning eighteen years of age, these subjects must be re-consented). Ability to comprehend and sign consent to have data entered in the PNH Registry.
Exclusion Criteria

Groupe d'étude en oncologie du Québec