Groupe d'Etude en Oncologie du Quebec

Titre	Paroxysmal Nocturnal Hemoglobinuria (PNH) Registry
Protocole ID	Registre PNH (M07-001)
ClinicalTrials.gov ID	NCT01374360
Type(s) de cancer	Hémato/Greffe
Phase
Type étude	Autre
Institution	CHU DE QUEBEC – UNIVERSITE LAVAL L'HOTEL-DIEU DE QUEBEC ET CRCEO 11 Côte du Palais, Québec, QC, G1R 2J6
Ville	Québec
Investigateur(trice) principal(e)
Coordonnateur(trice)	Theresa Jones 418-691-5181
Statut	Actif en recrutement
Critètes d'éligibilité	Patients of any age, including minors, with a diagnosis of PNH or a detected PNH clone, including patients previously treated with Soliris and withdrawn from treatment. (Subjects under the age of eighteen years must have parent/legal guardian consent. Upon turning eighteen years of age, these subjects must be re-consented). Ability to comprehend and sign consent to have data entered in the PNH Registry.
Critètes d'exclusion

Groupe d'étude en oncologie du Québec