Groupe d'Etude en Oncologie du Quebec

Titre	Paroxysmal Nocturnal Hemoglobinuria (PNH) Registry
Protocole ID	Registre PNH (M07-001)
ClinicalTrials.gov ID	NCT01374360
Type(s) de cancer	Syndrome myélodysplasique
Phase
Type étude	Autre
Institution	CIUSSS DE L'EST-DE-L'ILE-DE-MONTREAL PAV. MAISONNEUVE/PAV. MARCEL-LAMOUREUX 5415 boul. de l'Assomption, Montréal, QC, H1T2M4
Ville	Montréal
Investigateur(trice) principal(e)	Dr Thomas KIss
Coordonnateur(trice)	Johanne Blais 514-252-3400 poste 3295
Statut	Fermé
Critètes d'éligibilité	Patients of any age, including minors, with a diagnosis of PNH or a detected PNH clone, including patients previously treated with Soliris and withdrawn from treatment. (Subjects under the age of eighteen years must have parent/legal guardian consent. Upon turning eighteen years of age, these subjects must be re-consented). Ability to comprehend and sign consent to have data entered in the PNH Registry.
Critètes d'exclusion

Groupe d'étude en oncologie du Québec