Titre Paroxysmal Nocturnal Hemoglobinuria (PNH) Registry
Protocole ID Registre PNH (M07-001)
ClinicalTrials.gov ID NCT01374360
Type(s) de cancer Syndrome myélodysplasique
Phase
Type étude Autre
Institution CIUSSS DE L'EST-DE-L'ILE-DE-MONTREAL
   PAV. MAISONNEUVE/PAV. MARCEL-LAMOUREUX
      5415 boul. de l'Assomption, Montréal, QC, H1T2M4
Ville Montréal
Investigateur(trice) principal(e) Dr Thomas KIss
Coordonnateur(trice) Johanne Blais
 514-252-3400 poste 3295
Statut Fermé
Critètes d'éligibilité
  • Patients of any age, including minors, with a diagnosis of PNH or a detected PNH clone, including patients previously treated with Soliris and withdrawn from treatment. (Subjects under the age of eighteen years must have parent/legal guardian consent. Upon turning eighteen years of age, these subjects must be re-consented).
  • Ability to comprehend and sign consent to have data entered in the PNH Registry.
Critètes d'exclusion