Syndrome myélodysplasique

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  • Registre PNH (M07-001)

TITRE Registre de l’hémoglobinurie paroxystique nocturne (HPN)
PROTOCOLE ID Registre PNH (M07-001)
CLINICAL TRIAL.gov ID NCT01374360
TYPE(S) DE CANCER Syndrome myélodysplasique
PHASE
TYPE D'ÉTUDE Autre
INSTITUTION CIUSSS DE L'EST-DE-L'ILE-DE-MONTREAL
5415 boul. de l'Assomption
(514) 252-3400
VILLE Montréal
INVESTIGATEUR(RICE) PRINCIPAL(E) Thomas KIss
COORDONATEUR(RICE) Johanne Blais
johanne_blais.hmr@ssss.gouv.qc.ca
514-252-3400 poste 3295
STATUT  Fermé
CRITÈRES D'ÉLIGIBILITÉ (EN)
  • Patients of any age, including minors, with a diagnosis of PNH or a detected PNH clone, including patients previously treated with Soliris and withdrawn from treatment. (Subjects under the age of eighteen years must have parent/legal guardian consent. Upon turning eighteen years of age, these subjects must be re-consented).
  • Ability to comprehend and sign consent to have data entered in the PNH Registry.
CRITÈRES D'EXCLUSION (EN)